About Us
The Save Rare Treatments Task Force represents a diverse group of organizations with the aim of elevating critical rare disease issues and promoting policies to support rare disease patients and their families.
The Save Rare Treatment Task Force
Our Mission
Work with Congress and the Administration to ensure that critical incentives which foster innovation in rare disease are protected.
Our Goal
Protect and build upon the rare disease innovation ecosystem — including the Orphan Drug Act, the ORPHAN Cures Act, and the Rare Pediatric Disease Priority Review Voucher program — so that more people living with rare diseases can have treatment options. The Task Force works to defend existing incentives against repeal, secure orphan drug protections in new pricing policies, and ensure regulatory frameworks support continued rare disease drug development.
Our Members
The Task Force is a growing, multi-sector public policy and advocacy collaboration of organizations representing people living with rare diseases, biopharmaceutical innovators, and other health care stakeholders.
